Sharky and George are hosting a fund raising tea party for the Duchenne Children’s Trust at The Metropolitan by COMO on Sunday 8th December, 3-5pm.
The Duchenne Children’s Trust was set up by ex-Channel Four News presenter Emily Crossley and her restauranteur husband Nick after their son Eli was diagnosed with Duchenne Muscular Dystrophy aged two and a half.
The disease affects boys predominately, with most dying in their early 20s from heart or respiratory failure. Currently there is no cure but there is significant hope – research into the disease has progressed rapidly in the last 20 years to the point where scientists know what causes it and almost, how to fix it. Several different types of treatment are in the late stages of being developed and some are even in clinical trial.
The charity’s mission is quite simply to raise money to give to the best global research effort – to fund a treatment or cure in time to save Eli’s life and the hundreds and thousands of other boys like him.
For tickets to the tea party at Metropolitan Hotel, please see the attached pdf, or to find out the many other ways you can help, click here.